Monday, September 19, 2016
Holding on Tight
Monday, August 22, 2016
Another Surgery
| Before Surgery this actually looks really good in comparison to the previous months. |
Friday, August 19, 2016
What's Up?
Ok so I haven't been the best at blogging my true feelings about the unfortunate facial paralysis I have. Here is a quick synapse of what has happened just in the last 2 years.
- Mastoid (layman's tumor) in the inner ear canal, burned black skin, very long difficult surgeries.
- Woke up one day with the right side of my face partially paralyzed--spent 3 weeks in the ICU and had 3 surgeries to find out exactly what happened.
- The nerve in my face that controls the right side went completely dead--no reason except an infection we had a hard time getting rid of.
- I was told to go home and learn how to deal with the new face, Eric was told "Get used to your new wife, she will never smile again." (I love this Doctor, I am just stating how we heard it, not necessarily how he delivered it.)
- Went to Cleveland Clinic for 7 weeks waiting to have another at least 12-15 hour surgery. Had what I thought was a near death experience.
- Came home to Arizona, searched for a surgeon who specialized in facial trauma...found him, love him and he's at Mayo Clinic or Maricopa (options are nice)
- Had a nerve crossover surgery (layman's...they took the nerve from my calf and threaded it through the left side of my head, down to my cheek.
- Waited one year, and the nerve grew one inch a month--Dr. Lettieri very pleased..me too.
- Had the next part of of the nerve surgery, everything was great until it wasn't...infection again this time compromising the parotid gland (Layman's--your saliva gland)
Friday, July 15, 2016
Poo Poo On Dr. Lettieri
I had an appointment with my favorite smile doctor, hoping Dr. Lettieri would take this drain out of my neck imagine my surprise when he said
"That drain is not coming out today."
"There's no blood, I want this thing out."
Dr. Lettieri has beautiful blue eyes, they were staring through me with a smile as he said
"I'm worried about the fluid that is in your drain, I just want to send it off for testing."
"Um.....testing for what?"
"Not to worry, but before I take out your drain I want it tested to see if your perodid gland is leaking."
"I understand Dr. Lettieri but I need this drain out, it's driving me crazy and I'm going out of town."
"No you don't understand."...he smiled, but with a concerned look continued "We have a huge problem if it's the parodied gland, then we are back to square one. I'm not taking it out yet."
All I could think of was he's trying to help me, I need to listen to him. I looked at him as he walked out of the room, totally confused.
When the nurse came in he said "Are we ready to take out that drain?"
I immediately said "Yes, let's take it out...." the door was open and Dr. Lettieri came running in and said
"Don't let her talk you into taking that drain out" Raising his eyebrows at me still smiling I wanted to smack him.
Then he proceeded to tell the nurse to go get what he needed to inject BOTOX into the parodid gland.
I said "BOTOX? What the heck for?"
"Before you get all bent out of shape, the BOTOX is injected into the perodid gland to help stop the draining, don't worry it will help."
The first shot of BOTOX was so painful I yelled out in pain saying "I'm going to kill you."
As he continued "No your not, I know it hurts like hell but it's what is going to stop that draining"
I'm not sure how many shots he actually shot into my gland I think it was about eight shots. With every shot the pain intensified. I could hear and feel it crunching through the scar tissue. When he thought he had hurt me enough, he asked
"So I'm assuming you don't want the remaining shot into your forehead?"
"Uhh....that would be an astounding NO."
The next day he called me with the results....."Yes it is the parodid gland draining, that drain is not coming out yet."
..."Seriously? Of course it is, you do know I am supposed to go out of town and won't be back until August 3rd?"
"Yes I realize that but it is not coming out, this is a potential serious problem."
Later I text him "Thank you for taking good care of me, I'm sorry if I was mean to you."
"Belive me, I've heard worse, let's just get you better so we can start on the nerve situation. I know the shots hurt but they will help close down the gland."
So for now I still have the drain hanging out of my head, and now my BAJA is leaking something.
Monday, July 11, 2016
Surgery #35
On June 30th I entered Maricopa County Hospital with Dr. Lettieri (my smile doctor)
| Myself and Dr. Lettieri-just before surgery |
| Just to give you an idea of the seriousness of this infection. It is getting so much better. Thank You Dr. Lettieri |
Tuesday, May 17, 2016
Living in the Moment
Practicing living in the moment has been an intentional goal for my everyday living. I have to remind myself daily of the reward. I've heard it takes 21 days to break a habit so I'm assuming it also takes 21 days to form a habit.
Today I will be seeing my surgeon Dr. Lettieri. The last surgery I had on Thursday took me a little longer to recover from, purging my body of all the anesthesia is draining. Getting up and walking to the bathroom is about as far as I can go, even then I am wobbly, shaky and nauseated. On Sunday I was finally able to eat something, however it tasted of metal.
I feel like the world is hastily passing by just outside my bedroom door. I'm praying Dr. Lettieri will take out the stitches and close the open wound on my neck. The skin graft he took was from another area on my neck and those stitches seem to be healing well.
It's hard for me to comprehend that I have gone under general anesthesia 34 times in less than 6 years. Each time the healing takes longer and seems to weigh down my spirit. I want so badly for all these surgeries to be over. I believe now that this nasty infection is under control we can finally get going with the important issue of the nerve--yes, there will be more surgery; and I will endure.
| My view from pre-op |
| Heidi my pre-op nurse--these nurse are always so sweet to me |
| This is what it looks like now, after surgery. I see some bruising on my temple next to my eye...I always wonder what the heck happens during surgery to cause these bruises. |
Saturday, April 16, 2016
Surgery Tomorrow With Dr. Lettieri
When I came home from the hospital last week I was told to clean the open wound area everyday with a solution Dr.Lettieri gave me and to keep it covered. That night I came home and cleaned out the area and noticed there was a bandage or clear mesh substance covering the area. I began to clean and took that very important piece of integra out of my ear. I can tell you it was one of the worst pains I have ever felt and bled like crazy.
| Looking at this now, I can clearly see the integra |
| This is what it looked like when I went to see Dr. Lettieri--Integra Gone |
| Day after surgery--Dr. Lettieri Blonde Proofed the integra...it won't be coming out this time. |
Monday, April 4, 2016
Post-op With Dr. Lettieri
On Thursday March 31st I entered Maricopa County Hospital for my post op to the surgery I had on Monday March 28th. I felt good, had no idea what was about to come out of his mouth. " We are going to admit you in for an immediate surgery it looks like things have made a turn for the worst" The surgery was not long but I was not expecting to be headed to surgery so had driven myself. Frenchie left to take care of some maintenance issues on the condos in Mexico and would not return until Friday night. I wanted him to enjoy his time away, as he loves to visit Mexico and I know this would be an in an out procedure there was no need to alarm him if not necessary, I quickly sent a text out to all of my children asking them if any of them would be available to pick me up after an unexpected surgery but to please not tell their father. I knew he would rush home only to be waiting on me when he could be enjoying the cool breeze of the ocean. Of course this escalated into a full blown major even when Blake decided to call his father and tell him what was going on, without actually knowing what was going on. I ended up calling my sister Sonya and she was able to work out picking me up. She said Dr. Lettieri explained to her there was some infection to the peroded gland. Sonya picked me up and drove me home where I rested for the rest of the day.
Sonya mention when Dr. Lettieri talked to her he told me the cut on my neck is an open wound, he stuffed it with antibiotic beads. I've never heard of them and have to admit I was curious; but I was told not take the bandaging off. Last night blood was dripping and causing the bandages to loosen up. I text Dr. Letieri and asked what to do, he said to keep it covered with an ACE bandages around my neck to keep everything sterilized. It was never sterile, it dripped constantly their medicated bandage was falling off bit by bit, piece by piece....believe me it was not sterile. One morning I was changing the dressing because it had so much blood, it was very difficult to keep it from leaking. The packaging and taping they used caused the sharp edges of the tape to gouge my neck.
| Anti-Biotic Beads--they look like teeth |
Dr. Lettieri place in the open wound on my neck, if that is the surgery it should be quick and I should be home to my comfy bed before noon. Giving me enough time to heal and be on a plane for St. Louis on Wednesday.
I was told when being released from the hospital exactly what I was suppose to do to keep this doozie clean. It was stuffed with saline soaked gauze, then a dry gauze over that then wrap it up with an ACE bandage to keep it all sanitary and clean. Pulling the gauze off was brutalizing. Not enough pain medicine could keep from wanting to scream out in pain. I soaked it with as much water as I could.the started to peel away the gauze it was dry and bloody.
| now that is impressive |
Monday, March 28, 2016
Surgery March 28th Dr, Letteiri
I had a hard time sleeping last nigh with only 3 hours before surgery I at least tried. I'm not anxious about the surgery or Dr. Lettier. Again this morning doctors and nurses all had positive things to say about him. One nurse said "Oh My Gosh, I would not have any other trauma surgeon work on me. The anesthesiologist and his assistant mentioned him as colorful. I know he tries to come off as a hard butt, I've seen it with the residents when they make a mistake. However, I know Dr.Lettieri and know he wants to teach these young up coming Doctors how to do procedures the right way, the first time. He explained to a resident at Mayo if he had not known what I was going under sedation for or understand where I've been, my history, fears and anxiety this cute little resident could have cut off the wrong ear, or with other patients the wrong arm or leg. Yes, he was a little rough with him but respectful in showing him the correct way. At that very moment I knew he was the surgeon for me.
So he gifted Eric and I with his present explained exactly what he was gong to do, then they talked real estate---blah blah blah. When he left for the surgery room Eric sat next me to and held my hand telling me how beautiful I was. Seriously Nerium works, my skin has never looked or felt better. Several nurses hearing him talk about my beauty were so interested and rushed over to our little pod. He then told them how beautiful they were and how refreshing it was to work with such happy women and men today. All three of them were shocked, it was as if no man had ever told them. Eric snapped a picture with me and them for my blog.
One nurse said when I walked in, there was aura around me, she could feel my energy was one of happiness. This made me smile without hesitation, she was seeing past my own insecurities. She then asked me to go remove my make-up...very proudly I announced "I don't have any on" she quickly grabbed by chart and sighed..."you are 53 year old?" me "yep and proud of it" her " I want to try it, and even sell it if I can." me "Of course you can, here take this Success magazine and I will get you a sample just as soon as I can get your phone # and email address. (email sent before I entered surgery).
She then asked me about my journey with Nerium, I told her the truth, my life, just like everyone else is full of trials, most we cannot see. I joined Nerium 2 month before the facial paralysis. I told her it was an inspired intervention, I've now had 10 surgeries with Dr. Lettieri and 31 total in the past 6 year
at Mayo Clinic with some pretty special surgeons. I have never slowed down sharing everyday, magazine, bottles, videos, 3 way calls, etc....10 core all the way. The most important things she loved about Nerium was the Happiness Movement and the Night Cream. I wish the person who told me "If I spent more time on Nerium than I did on #happyacts for the #marchtohappiness I would be making a lot more money, would have heard this conversation. Nerium graciously allows us to do all of them at once. I do, I am always prepared with Live Happy Magazine, pass a along card and stickers--but those always when appropriate come with "Have you heard the buzz about this amazing Anti-Again named Nerium" I always do at least one #happact a day and feel uncomfortable sharing those on social media, I've always been taught acts of kindness should be done in quiet with a reverent heart. But since it was the challenge for March 20 being the international Day of Happiness--they asked us all to do an act a day and post it util March 31st. Surround yourself with like minded people, I happen to enjoy sharing Nerium and sharing a cookie or two,
Sunday, March 27, 2016
Because He Lives
Tuesday, March 1, 2016
Finding Humor at Mayo
Today was interesting to say the least at the Mayo Clinic, we checked in at 3:00 for a 3:15 appointment with Dr Pockji (oncology surgeon) When we arrived there were about 20-30 people waiting to see their doctors. Eric says "wake me up when they call your name" I put my head back and try to get an eye rest also. After an hour, I asked them if I had been checked in correctly, because it has never taken this long. She cheerfully tells me that "yes you are all checked in" Seriously? It is now 1 1/2hours past our appointment time and NO-ONE is left in the waiting area, well with the exception of the Williams.
They finally take us back, and an hour later Dr Pockji comes in. She apologized and said that one of the surgeons did not show up this morning, so she had double the load today.....I'm thinking I wonder how many years this lady had to go to school to get a degree of medicine, I know she is a logical smart woman right? So why did she not know THIS MORNING if she was taking on another Surgeons load of patients, that she might get a little behind, that perhaps someone in the office... like her physicians assistant could of given me a call and told me to reschedule or come a little later so that I would not have to wait for 3 hours to see the the Doctor...??Just one of those things that make you go.... UM duh?
Now the serious stuff for a minute
Dr. Pockji explained to me the surgeries I need to have, at this point she was wanting me to have all of them in one day, which would be 18 hours of surgery, 18 hours of being under anesthesia? I don't think so....I told her as fun as that sounds, I would have to decline at this time...ha ha..actually I told her that my son is leaving to go out of the country for 2 years and I will not be able to talk to him (with the exception of Christmas and Mothers Day)or see him in those 2 years, so it is important for me to spend some time with him, I really don't want him to see me after surgery, also that my daughter is getting married on November 14Th, and I still have alot of planning to do, and that my other daughter is having a baby in December and would like me to be in the delivery room with her. Dr. Pockji kinda looked at me like "what the heck, who are you?" but she agreed that this would be way too much surgery with everything I have going on in my personal life, she said that the wedding and baby are more important right now than anything else. She explained to me that I will be having another surgery anyway in 5-6 months so at that time we will do the other procedures that I need done, including the hysterectomy. I can't believe the relief I feel knowing that instead of having 5 different surgeries going on at one time I have cut it down to 2. So just like that...I put 3 of my surgeons on hold...WOW the power I have today huh? Now if I could just have the power to get this nasty old cancer to leave my body.
So this is what is happening now: The last week of Sept or 1st Week of Oct I will be on the schedule for my mastectomy and beginning of the reconstruction surgery. After the surgery she will be able to tell us more about what stage the cancer is in, they know for sure that one of them is in stage 2-3, and something new I found out today is that both of these cancers are different, one is ductal carcinoma, and the other one is a hormone fed carcinoma. (this one I need to find out more about)
OK back to the funny stuff, when Eric and I left, there was not one other person in the building, except for the 5 or 6 maintenance people who were coming in to clean, Eric and I laughed as we skipped to the car, Eric wanted to sing on the top of his lungs and do cartwheels in the halls...if you have ever been to the Mayo Clinic you would understand that reaction, it is normally wall to wall people, busy people trying to get to appointments or nurses and doctors rushing to somewhere, when we arrived we had a really hard time getting a parking space, now the parking lot had our car and maybe 3 others, we decided those must of been the maintenance workers cars...this may not seem funny to you but to us we enjoyed it. We ended up being in Dr Pockji's office for 3 hours by the time we left, and I think only us and her remained in the building, which is a pretty large facility. Its good to have a few answers today, not that it changes anything, but it takes my stress level down a little to know I will have 2 surgeries instead of one big huge 18 hour one.
Dr. Sal Lettieri
In December I had 2 surgeries with Dr. Lettieri. I was able to go back to work in January, but for some reason the area on my neck where the drain was inserted is not healing. I'm tending to believe Dr. Barr's when he told me my body unfortunately does not heal as most other patients do. I have bad gene's I think is what he said.
I'm still changing the bandages 3 times a day, the wound gets better then suddenly goes bad again. I'm not going to let this stop me or slow me down. I'm still not giving up on Nerium, trying hard to be true to myself, reading from a good book everyday and sharing with others.
Insomnia is still a major side effect I'm dealing with. The sleep doctor wants me to get up every morning at 4:30 am, this is the time I get up to go to American Airlines for work. However, I only work three days a week....I've tried but not sure I can keep this regime as it is not helping me to sleep.
Dr. Northfelt once asked me "If there was one thing you could have back pre-cancer diagnosis what would it be?" my answer is always "I'd love to be able to sleep or even take a nap!"
My hip is slowly deteriorating, Dr. Lettieri has given me a name of a orthopedic surgeon who he thinks will help. I can no longer keep getting cortisone shots, well I can, I just don't want to. I need a permanent fix not a temporary bandage. I'm hoping to do this without surgery, so I will go forth with this new doctor and see what he has to say. If Dr. Lettieri knows him and recommends him, I'm in good hands.
Today I am grateful for options in medicine.
Thursday, December 31, 2015
Emergency Surgery With Dr.Sal Lettieri
The last few weeks have been a whirlwind of emotions. Once again I am stuck in either a hospital bed or now in my own bed. I ran into the same problem I had with the first surgery. Dr. Lettieri warned me this surgery would be tedious. Besides the complications of waking me up from the first surgery the right side of my face has swollen up and began to drain not long after I came home from the first visit to the hospital.
Dr. Lettieri was out of the country, I called his office and was able to see another surgeon at Mayo Clinic. Unfortunately the inflammation needed to be drained. A fistula had formed. Dr. Lettieri explained to Eric after surgery he was afraid this may happen. While he was in surgery the paraded gland (saliva gland) was in the way of the nerve he needed to connect with. Dr. Lettieri could not get to the nerve he needed without disturbing the paraded gland. In the long run this slight unfortunate problem was unavoidable.
When Dr. Lettieri arrived home I saw him right away, and he arranged surgery immediately. I am now at home, recovering with a drain hanging from my head. I was able to see Dr. Lettieri in his office on Monday he took the head wrap off, left the drain in gave me an anti-biotic and now we wait.
How am I feeling? I am not on pain pills, you know how I hate those. With that being said, I also hate not sleeping. It's always a fight with me to take the medicine and sleep or live with the pain and use another source for sleeping. I guess that was clear as mud.....ha ha. My honest feeling is some pain, but grateful for a surgeon who knows what he is doing and is attentive to my health needs. Once again I have been lead to a surgeon who I love. In fact when his office called on Monday to get me in I advised Sharon his assistant "I will not be seeing any surgeon but Dr. Lettieri, I will wait if I have to." I didn't she and he got me right in. I want to hug him every time I see him, he is a breath of fresh air--but not necessarily a hugger.
So for now I lay in bed, work my Nerium business when I can, nurse my wounds and again thank the Lord for seeing me through a rough surgery.
Saturday, December 12, 2015
Surgery with Doctor Lettieri
It's been difficult to blog current events. I've signed a book deal, however I am going to keep up my blog. Soon it will have the logo from my book. I will also have a FB page for caregivers, survivors, or for anyone wanting to know how to comfort a friend, family member or loved one during and after cancer has been diagnosed.
I entered the Mayo Clinic Hospital in the early morning of December 2nd, 2015. The last surgery I had with Dr. Lettieri was successful. He took a nerve from my leg masterfully entered behind my left
ear through the left side of my face under my lip. We were told if the surgery was a success we would feel it grow one inch per month. It has done just that and now it is time to finish the job. This is a very tedious surgery, trying to find a nerve that is workable from the right side of my face will take a few hours.
When I woke up in recovery, it was a little touch and go scary for Eric--not really sure if I was having a stroke or reaction to medicine--either way I dry heaved for over 24 hours, did you know dry heaving hurts?
After neurology was quickly called to the rescue I had CT-PT-MRI and brains scans--no sign of stroke--however since I was still in much pain and dry heaving I was kept for longer than expected.
My surgeon Dr. Lettieri is in Italy......What the Heck? Doctors get vacations?
I needed to go to Mayo Clinic since the surgery sight is bleeding. I was temporarily fixed up, but will not be seeing another Surgeon until Dr. Lettieri gets back. (Monday) There was nothing wrong with the surgeon I was able to see, but my ultimate choice is Dr. Lettieri--FOREVER- I made the mistake of going to Cleveland Clinic on a suggestion --HUGE MISTAKE -- I will never do that again.
While working on the nerve in my face, Dr. Lettieri had no choice but to try and work around my paraded gland. I am well aware of this gland and the damage that can happen if I don't get it fixed but I am not seeing anyone else but Dr. Lettieri. The gland for those of you who don't know is the gland where your saliva generates. This gland was compromised my face has backed up blood, either running down my throat or running out of my incision. We cannot keep it controlled with our own packing.
I'm looking forward to seeing Dr, Lettieri next week. with more updates to come.
Saturday, August 1, 2015
Hopes and Dreams with Dr. Sal Lettieri
This time 6 years ago I waited anxiously for a negative diagnosis of cancer. Not receiving the news I was expecting, looking back on this journey I've been on I realize I am being prepared. For what? That I can't answer, I'm not sure I want to know. I would be lying if I said I have not had days when I want to crawl up in my bed, close my eyes and not wake up. I have felt unmeasurable pain, physical, mental and spiritual. I think we all want to believe we are "strong" If I had a dime for every time someone has told me how "strong" I am in the past 6 years, I'd be a rich woman. I'm grateful to those people. So many times I have prayed for a miracle and felt abandoned. Now that I've cried enough tears to fill a swimming pool I trust in Him. So many of us have a hard time recognizing the blessings that come in disguise of a trial.
Funny thing about that is, I am a rich woman. Not in a monetary way, but I am richer in my strength of who I am. I've been forced to live my life with loneliness, hardships and pain. What if I had not experienced these things? Where would I be now? Who would I be? He has bigger and better plans for me. I am in the midst of fulfilling commitments and I know He will keep His promises to me. I will serve other's, be happy with whatever circumstances come my way.
I have had to learn to challenge my thinking, to lean on a positive environment of people. I'm trying to learn how to balance my life. Work, family, Nerium, Mayo Clinic, friends, personal development and daily intentional goals have helped me to keep focused on what is most important. I've had to be brave in circumstances where other's don't understand or actually don't have the capacity to understand what this past year has done for me. Just when I thought I could never look myself in the mirror again, I became brave I let it define and refine me. I learned that my face is not who I am. I can't say I have fully embraced the idea of a partial paralyzed face.
A year ago I read a book that changed my life and added value to who I am, I will forever be grateful for having the knowledge before I read it, that I am a beloved woman of God. If not for having that testimony I probably would not have been able to make effective choices,. I've learned your thoughts either serve your growth or serve your decline. It's been proven we make and average of 50,000 choices everyday. I've always been a journal writer, a reader and I love good uplifting music so when I read The Slight Edge by Jeff Olson, I was like a sponge. I can attest to the power of words but as a child words were usually to my detriment. The Slight Edge convinced, and reconfirmed to me I have been lead and whispered to by the spirit all these years, I'm exactly where I am supposed to be.
Humility, a word I probably would have never used to describe myself 6 years ago I'm progressing by studying everything I cab get my hands on. While studying I often think of all the people who have touched my life. Who I think are a true example of humility. Not one of these people know they are humble, isn't that interesting? It is who they are, an attribute they have mastered without knowing they have. Some of these people have had devastating events happen in their lives and learned to control their thoughts and actions to mirror match a Christlike attitude. Other's seem to not have had any apparent significant trials in their lives. They surround themselves or have been surrounded by proactive people who have built them up, showed them compassion and unconditional love. The attribute of Humility is such blessing, and not easy to accomplish.
During my reading of the Slight Edge and studying scriptures, I am finally able to say I believe in the power of the brain and how our thoughts, positive or negative can effect everything. I made the choice to look myself in the mirror everyday and say "You will smile someday" It's been over a year, I've had 3 doctors tell me I will never smile again, I will never have facial movement on the right side of my face. I'm glad to report not all doctors are in charge of what the outcome of positive mental attitude is. Dr. Lettieri told me I would smile again. He has encouraged me to continue to work that muscle. Every morning for a year I tell myself over and over again "I will smile again" then I tell my brain to tell my mouth to move. Dr. Lettieri has never given up on me, he has never said "You Can't or you Won't" It sometimes requires a surgical procedure but I am slowly but surely starting to tell my brain to simultaneously smile when I tell it to. It's working, I am reaping the rewards of my daily affirmations. It's a slight smile, but what's more important is realizing, just like reading from a good book everyday, kneeling to pray everyday, having faith all things I've done all my life are things I have mastered by doing them receptively. Those things are a part of who I am, if I stopped doing those things it would be like not brushing my teeth everyday, eventually they would rot. It really has been such a slight change, but adding it to my daily routine has strengthened not only my brain and facial muscle but it has lead me to believe an arrow could be shot at me and I could repel it.
I am endeared to Dr. Lettieri, and to Heather Lucas. She has seen me through so much. I miss Dr. Kreymerman and wish he was here to see my progress. Dr. Lettieri has now been re-named as my "happy smile doctor" He said I would, I said I could and I am making progress. I am beginning to dream again, to have hope for my future. Prayer, the greatest miracle in my life when burdens have weighed me down, prayer from so many people have helped me to believe in myself again. Putting my faith in Him I believe I have even greater miracles to come. He could take away all of this but His plan is perfect in every way. These trials are refining me into the woman I've always dreamed of being.
Thursday, July 2, 2015
Post-Op with Dr. Sal Lettieri
This past week has been hard, not because of the pain from the surgery. Staying home and not being able to drive has been difficult. Today I had my post op appointment with Dr. Lettieri. Sonya was so sweet to take me to Mayo I don't like anyone to go with me because it is not a fun way to spend time. This time I was forced to ask for help, Eric could not go because my appointment time was changed at the last minute. I wondered what she would think of Dr. Lettieri and hoped she would love him as much as I do. I warned her as soon as I introduce her as my sister Sonya, he would have a smart comeback about Monya-Sonya. I was right, he asked why "I said it was the 60's" he laughed asked if we had another sister named Tonya, and of course I said "oh no, that would be too easy her name is Kris.
Today he had a young resident with him Dr. Deep very cute and very young. Immediately Dr. Lettieri announced he was not happy with the eye surgery. We're going to wait until all the swelling goes down then he will decided how to proceed with more surgery. My eye started to open yesterday and it is dripping more than ever. He said it was just going to get worse, and that he wished he had been a little more aggressive with the bottom lid, it's drooping more than Dr. L wanted it to be.
Dr. Lettieri was really happy about my nerve cross graft he did in February, it is even better than what he had expected. I am hoping I can wait on the eye surgery and have him do that at the same time as the nerve surgery. I didn't bring that up with him today, I will be seeing him again in a couple weeks.
Heather came in and took out the rest of the stitches in my eye while Dr. Deep and Dr. Lettieri talked doctor talk--way over my head.
Today was good news about the nerve, but surprising news about my eye. I could tell he was disappointed. I told him "it's ok" he said "not for me" I made the assumption he was being hard on himself because he's a perfectionist. He said "No, that has nothing to do with it, I just want you to have it working at the best it can, and I know it won't so I want to fix it" he continued to tell me I would have more drainage than I had before if I didn't get it taken care of.
Many people have questioned my choices, guess what? that's ok I realize you are not living my life you are not the one who has to kneel and ask what to do. I feel completely comfortable with the decisions I have made. Many have given me natural path choices and questioned my choice to go medicinal, it's ok too. Everyone has a different thought process, these choices were made by relying on the Lord to answer me and lead me to the right places. I can honestly say the only time I doubted a decision was when I went to Cleveland Clinic, I felt rushed to make an answer and Dr. Lettieri was out of the country when this all happened a year ago. We made a fast reactive choice, based on the fact we were told with a nerve we only had a small gateway--because I didn't know a "small" gateway didn't mean I needed it taken care of within a week or two. I could have waited for Dr. Lettieri. I don't look at things that way, my mind doesn't process that way. If I hadn't gone to Cleveland Clinic I would not appreciate and love Dr. Lettieri like I do, I wouldn't appreciate Mayo Clinic like I do. So to those skeptics who like to give me their opinions, I will not apologize for following my heart listening to the spirit and doing what we thought was best at the time.
Surgery with Dr. Sal Lettieri
June 24th 4:45am on our way to Mayo Clinic. I talked Eric's ear off trying to keep from taking any anxiety medication--hey, who knew.....it worked? While entering the Clinic I refused to look to the left, intentionally I jabbered to Eric about what a positive experience I was having with Nerium. I wanted----NO I actually needed to keep my head in a good place for at least a few more minutes while we got registered.
Just over a year ago was a dreaded day. I'd been discharged from this same hospital with a disfigured face. Hearing a doctor tell me "you need to get used to the new Monya, your face will never be the same" If I were to look to the left I would have a vivid remembrance of being wheeled out in a wheelchair and while waiting for Eric to bring the car around I watched a woman fall to the ground have a massive heart attach. I listened as "code blue" echoed through the corridor. I watched as healthcare professionals did all they could do to revive her life. They were unsuccessful, and I felt nothing but jealousy. I wouldn't necessarily say this was my lowest point of my life, but it ranked up in the top 5.
I've seen and felt tragedy, separation anxiety, depression, heart ache, enormous unexplainable pain, loss of hearing, sight, smell, both breasts and all my hair. I've had temporary loss of feeling in my hands and feet. I still look back at all of this and know the positive out weighs the negative. I'd do it all again, feel every ache and pain to know what I know now. What I know to be true is there is life after this earth life, it is beautiful and peaceful there is no pain, hurt or jealousy. It is a place like no other place you have been here on earth. I want to go there again, I will accept and take on all that happens to me hear on earth to have that feeling for eternity.
After being registered Eric and I headed up to the 2nd floor for surgery. When I got into the elevator
I couldn't help but look at that spot, it was empty; too early in the morning for visitors. The rush of reality came flashing back of that day a year ago. Eric asked if I was OK, I responded "yeah, sure I'm good" After checking in with surgery, they took me right back. I guess Dr. Lettieri is on time. After vitals, question after question about allergies and when was the last time I ate or drank anything, I started to dose off. My thought was "Read my chart, can't you see how many times I've answered these questions? this is not my 1st rodeo" I saw Dr. Magtibay walk by and into the patients room across the hall, I suddenly sat up and wanted to talk to him. The nurse continued with her questions, but I keep asking her to ask Dr. Magtibay come see me when he's done.....she was looking at me like really? I said to her I will answer all your questions, you can start my IV really fast if you promise me you'll get Dr. Magtibay. This time the IV only took a one time poke, that's new it usually takes several pokes then they have to get a different, more efficient RN to poke me.
Soon Eric came back and just after that came Dr. Magtibay, I just love him. He hugged me wanted to know about my surgery. I asked about his children and wife, then Dr. Lettieri came in. I didn't have to introduce them they knew each other. Dr. Magtibay excused himself, turned smiled at me and wished me blessings on a great outcome.
| ready to go, Dr. Lettieri took this picture so I could see the difference of my smile |
Dr. Lettieri smiled at me and when I smiled back.....he said "do that again" not knowing what the heck he was doing I said "why?" he said "quit being difficult just do that again, that thing you just did with your face" I shook my head and said with a big smile "this?" he smiled big, he said "where's Heather?" "I haven't seen her yet" Dr. Lettieri went out to find her, but she was walking in at the same time. "do that again for Heather" I smiled as best I could they both in unison said "It's working" Dr. Lettieri asked me to do that same thing over and over. Apparently the surgery he did in February with the cross nerve was starting to show. By their responses I could tell this was good news, he was happy. Heather has been with me from my 1st diagnosis with breast cancer, and we have become great friends. I can honestly say she has been a true to the end friend. She watched as I suffered through chemo, radiation, expansions numerous surgeries she has assisted on for me. She was there last year when I was rushed to the hospital in horrible pain, curled up in a fetal position losing all control of my bodily functions. She stayed with my sisters and helped them to understand what was happening to me. I love her like a sister, I really really love her. She was happy for me, truly happy for this bit of HOPE I was finally feeling.
| Dr. Lettieri, Me, and Heather I love them both |
Saturday, May 30, 2015
Seeds of Hope




