Enduring ongoing adversity

There are so many differences in all of our lives. Depending on the circumstances, new mothers sometimes feel overwhelmed, fathers feel pressured to take care of families while some struggle with loneliness.  I believe we all  have at least one challenge in common. Dealing with some type of adversity.  I've also realized the reality of those adversities  cannot be compared to each other.  For example; Many years I was dealing with a teenager who was really struggling with some serious issues.  It was heartbreaking to watch, especially knowing if this child would just be obedient life would be so much easier for them. One day I went to visit a friend who was clearly devastate and beside herself in tears. When I inquired what was wrong I was shocked at her answer. She mentioned her daughters name then through her tears explained "She broke a family rule and got her ears pierced, she's only 15, we agreed no ears pierced until the age of 18" Her perspective and her trial was nothing like what we were dealing with, however in her family it was obviously just as heartbreaking. 

There have been periods, sometimes long ones, when my life seem to flow with little difficulty. Unfortunately the nature of our lives gives way to distress,  for me periods of good health have come to an end, and misfortunes have arrived.  It seems to be more difficult  when the comfortable times have gone on for a while. The suffering of health issues or the loss of material security can bring fear and sometimes even anger. I have to be transparent here, and admit I have felt the anger and questioned why?

I realize the  anger comes from a feeling that what is happening is unfair. It came at such a shock. To be blessed with  good health all my life, the serene sense of being secure had become deserved and natural, almost as an arrogant ignorance. After all hadn't I proven my worthiness and loyalty to the Lord? For this health issue to continue now for over 5 years, a feeling of injustice has sometimes come to my mind.  I have considered myself a brave woman yet many times have cried out loud “I have always tried to be good. How could this happen?”

The very opportunity for us to face adversity and affliction is part of the evidence of  infinite love. God gave us the gift of living in mortality so that we could be prepared to receive the greatest of all the gifts of God, which is eternal life. Then our spirits will be changed. We will become able to want what God wants, to think as He thinks, and  be prepared for the trust of an endless posterity to teach and to lead through tests to be raised up to qualify to live forever in eternal life.

There is an  aching sometimes for an answer to “How could this happen?” it becomes even more painful when I see others struggling including those I love.  When Recker was diagnosed with Autism I wouldn't say I was devastated, but I was honestly asking "why?"  It was especially hard for us to accept when he was so innocent. Then having our 2nd grandson diagnosed with Autism, I have to be honest it rocked my testimony, hitting my knees continually asking "why, why would you send these spirits to the same patents?" This type of  distress can shake faith in the reality of a loving and all-powerful God. I felt the spirit continually reminding me, the Lord knows all and if I continued without faith doubt could grow and spread it could make me or my children turn away from God, blaming him with the thought of him being indifferent or cruel. I knew I needed to check in with Him daily or  those feelings could lead to loss of faith and question if there was a God at all. Again I found myself asking like I did several months after processing a cancer diagnosis...."why me?" with the comforter conveying to me over and over again I soon asked "why not me?"  It takes time to get that pain to go away, but I can honestly say now "Thank you Lord for blessing us and trusting us with these two little boys" (I am not speaking for Jeremy or Kayla, I'm not sure they are feeling the same.)  What a pure love they have for us and we for them.  

It soon became clear that for me to have trust in Him, I  must be transformed through making righteous choices daily, that is hard to do. I often still wonder  if I am prepared for such a great a trust.  Passing through trials and testing requires a great deal of faith.  I deal with facts and  the education for me could come only as I allowed myself to be subject to trials while serving God and others for Him.

I'm so grateful for this education, as I experience misery and happiness, sickness and health, the sadness from sin and the joy of forgiveness. I'm convinced that forgiveness can come only through the infinite Atonement of the Savior, which He worked out through pain we could not bear and which I can only faintly comprehend.

It comforts me even to know I must wait in distress for the Savior’s promised relief that He knows, from experience, how to heal and help me and others who suffer.  Faith in that power has given me patience as I pray and work and wait for help. He could easily take this all away but He chooses to teach by own personal experience. Just as I need to learn from my own personal experiences.

The Lord’s relentless answers to my pleading  has helped me and has encourage me in times of darkness. Even when I feel the truth of the Lord to deliver me in my trials, it still tests my courage and strength to endure. Lately it feels it will not end, during these times even physical strength is difficult, listening to RS lessons on how to deal with trials and adversity are hard to comprehend.  The comments made are even difficult to hear. (sorry just being honest)

I have seen faith and courage come from my testimony.  I am being prepared for eternal life. The Lord will rescue His faithful children. The child who accepts a trial as an invitation to grow and therefore qualify for eternal life can find peace in the midst of the struggle. This is so much easier to write than actually live through.

I am far from perfect, but I have begun to prepare my heart to be worthy of the Lord. I've had the attitude “Things will work out.” Medical insecurities have not eroded my faith; it has tested it and strengthened it. And the feeling of peace the Lord has promised has already been delivered in the midst of the storm. Other miracles are sure to follow. I expect the miracles to happen, and thank the Lord ahead of time for the miracle that I know is just around the corner.
I watch from a distance how Kayla and Jeremy have embraced the trial they have been faced with.  Recker and Ezra are beautiful loving children, but don't mistake their love and affection with an easy road to take.  From day to day they struggle, not knowing "what is going to happen next?" Those boys are into everything.  Recker and Ezra are both non-verbal so try to imagine their frustration knowing everyone around them can talk.  Their only way of communication is by taking us by the hand and leading us to what they need or want.  I can only translate my feelings as a grandparent, not as the parent who is caring 24 hours, worrying 24 hours.  The special bond these boys have with their cousins and family is unconditional love however, I can't imagine the heaviness on the shoulders of his parents. The responsibility the Lord has given them, is beyond what I can comprehend.  I know that I am on a road to be the best I can be so I can live with these perfect little boys for eternity.

I don't know why but I truly believe the Lord customizes trials to best strengthen and purify us individually.  Often it will come in the inspiration to do what might seem especially hard for the person who needs help himself. The test, and there is always a test, is how we deal with the trial.
 I know from my own experience that He can and will give us strength to rise through every trial. 

Opposition in all things makes me a stronger person

Another week of decisions not quite clear--however there have been changes that have been written on my soul.  My heart is forever changed and I will never be the same because of these experiences, sometimes I wonder if it better or worse..Mostly because I know when the storms come in my life they seem to rest and stay ever entwined in my heart until I can figure them out on my own. When I say "on my own" all that means is that I have to come to a higher mountain, much higher than the hills I've been climbing.  So many times I have been down or in despair but this time is the worse I have ever experienced, and forced me to get my knees calloused as I have begged for answers.  Many times I have spent times in my car, crying out loud wondering if I have been abandoned--no answers have come.  Earlier this week I received a beautiful note from a young girl who has come to be a 2nd daughter to us.  I was so touched by the wisdom she offered it brought me to tears, and it was at that moment, she needed to hear from me as well as me hear from her. I have not been able to get this conversation out of my head--It's words I've told myself over and over again, but somehow when I think them, they don't quite seem the same.  I've truly seen and felt the truth of the love our Heavenly Father, he's always there, right there just waiting to see how in tune I am......not quite on the same page this week--but the fact is, I am living proof that modern day miracles happen everyday--he hears every prayer, he knows every struggle--it has to make Him feel sad or disappointed when my complaints come in handfuls.  I imagine He thinks, "I've really out done myself with this young lady, she can't even see the possibilities and strength she has" I know this for sure, we can never enjoy the good in our lives unless we have felt of the bad or the trials that life often times brings.  We can't enjoy joy without living through some life changing events.

I will never deny what I have felt, and some of the experiences I've had this past few weeks are so sacred to me, I will not share them on this blog, but will keep them sacred in a draft for my children to read--maybe it will redeem myself from my last post--(I cussed) sorry about that--it was real and raw, should of given a disclaimer before you read.

I knew my family including my sisters would  be nervous when they read my last post--BTW--I'm not planning on killing myself--just at that very moment-I wished it was me, and I was happy for that lady at Mayo Clinic, don't misunderstand and send me emails as to why I shouldn't write or say what I feel--I am no longer amused nor do I want to be entertained by your negative energy.  I'll say it again, please don't read this blog if you are not willing to listen with an open heart--this is not your journey--it's mine--and as the Lord has created us all different we all have different philosophies of how to deal with life changing events--this is my way and I will not apologize for my feelings, and one more thing, I am a Christian woman,who rarely says anything other than what I'm feeling, this does not mean I don't also have to ask for repentance--EVERYDAY--mostly for the uncomfortable feelings I get when I read your emails of criticism.  With that being said, let me update on this weeks activities.

I began by getting my records from Mayo Clinic, we picked them up....we as in Frenches my driver. I am going to the Cleveland Clinic for my 2nd opinion, the doctor is renown for his facial paralysis reanimation surgery for people like me--when his office received the first batch of records and pictures, they were amazed at what they saw--Debbie, was friendly and more than helpful, and I do need to insert here my friend Diana Lents is the person who knows how to get this stuff done, not only that but she is a nurse and will be able to give me my infusions in my picc line twice a day. If Cleveland Clinic  does not work out with have a connection with a doctor from Baylor and Mayo in Rochester.  I insisted on Eric staying home--I can keep him updated--I don't want to put him through anymore than he has to, especially when he needs to work.  So now that I have read all of my reports from Mayo, I think I understand a little more of what is going on.  A quick synopsis is when I was 3 my eardrum was broken due to a blow to the head, with that trauma came many surgeries as a child.  I was told back then I would never get water in my ear--never did--at age 29 I had a mastoidectomy  removed. From that point on, I was told some repairs were done and I could not go under water--the first time I swam was in the Hawaiian ocean when I was 30 years old.  Skip forward to now, after going through chemo and radiation, mostly the radiation the beams stirred up some weird stuff in my ear.  I went a year ago to see Dr. Barr's, he suggested getting the mastoid out and to possibly do the Baja Implant.  I refused at that time to do it, just because I was racking up some surgeries at Mayo and at that moment I was not worried about it.  Skip now to October of last year, my ear began to drain again I went to see Dr. Barr's it was determined at that point it would not be a good idea for me to wait for surgery--we started on some anti-biotics to see how they may help, on December 10th Dr. Barr's went in and took out the mastoid, at that point he took some skin from my upper arm to create a new eardrum because it was completely blown out too.  I took a 2 month leave from work--everything in my ear looked good, it just was not healing like we wanted it to, I was concerned about infection but was told there was no infection and it had been tested by infectious disease.  I was also given a neurology appointment and consult--nothing. After a couple of months on antibiotics my ear began to heal, in fact they were extremely happy with the outcome.  Still one more surgery on the schedule to get all the debris out and re-evaluate, this surgery was successful but since the doctor in the OR before us went over by 5 hours I had to return for another surgery--even after this one it looked good--Dr. Barr's grafted skin from my upper arm to cover some spots that were beginning to show bone.  Now all was good, I had one week to wait for my follow up, Tuesday the night before my appointment, something popped in the back of my head near my skull , an immense pain took over my body,, and not wanting Eric to worry, I went into a different bedroom and hugged a pillow to scream inside it,  I crawled back in bed next to Eric around 5, I didn't want him to know anything was wrong.  I then drove myself to the Mayo Clinic and was admitted immediately. My face looked like it had palsy, no feeling on the right side, and my speech was off-I also could not raise that eyebrow or smile from the right side. This was on a Wednesday, on Friday I had another surgery--the pictures he showed Eric were nasty--it showed where he had taken more skin to graft around the nerve, but within a few days it had gone gangrene, and partially killing off some of the facial nerves. This is not palsy. Now we are a deciding point, as I visited in length with Dr. Barr's, I didn't like any of his options, and he was open for us to get another opinion, so we are.  I realize there is a window of opportunity for nerves, we are asking the family, close friends and now ward and stake members to pray for me and specifically for me to feel peace with  whatever decision we decide is best.  I want to include all my decisions with the Lord, he has not let me down yet.  With the strength of so many people praying I KNOW an answer will come, one that I will more than likely have to accept and forward in faith hoping I can find some peace--My face will never be the same, but it was never perfect before anyway--I'm ready--well I should say I am ready today and hopeful with all the fasting and prayers going out for me--the spirit will strengthen me to another height and again prepare me for what it is the Lord has in store for me, and what I'm learning will help others, even if it gives them a bit of strength to go on for another day, then do it again and again until life becomes a school of learning and a place where they too can pay it forward.

black dead skin December 10,2013

After 1st surgery in December--impressive staples huh?

January--looks like infection

April 28th Surgery

One week after my last surgery, in for a follow up my face has already began to take on a new look.

THIS IS MY SPECIAL TEXT I RECEIVED THIS WEEK--THANK YOU I NEEDED IT.

Your kids deal with situations like this very differently. Everyone was a mess. Everyone was crying. We all thought this was it. But your kids are also very strong. They get that from their mom. They are very good at keeping face in a tough situation like that. I think everyone just thinks that there is always going to be more time with you. That you'll keep fighting, because you have for almost 5 years now! We all love you so much, there are so many people rooting for YOU. There are still so many people who need to hear your story and feel inspired. You were given another chance a few weeks ago, instead of looking at it like another part of you missing or another surgery, think of it as another chance from Heavenly Father. You get to still be here on earth to see more grand kids, to see Mexico again, to watch your girls get pregnant, to see your sisters, to see more places with Eric, to sell more Nerium!!. I'm sure there were days 4 years ago going through chemo when you wanted to die. But can you imagine if your wish was granted then?? You would have missed all of your kids weddings, Ezra, Paris! I'm sure there were days when you were a little girl that you wanted to die. When the pain of your family wasn't going away. But look at your life Monya. Look at all the precious joys you've been given. Life sucks so bad, but with the bad you get joy in ten fold. I LOVE YOU. PUT ON YOUR FIGHTING PANTS AND KICK BUTT. I know how hard this is for you. You're handling it all so well. You can do it. There are so many people who support you and love you. And who will love you no matter what. You came very close to dying a few weeks ago. So right now the only thing that's going to get you through this is focusing on why you were kept here. And the things that keep you going. So many grand babies you don't have yet. So many things with your kids/adopted kids lives that you can't miss. My heart is so broken that you had to go through yet another trial. I want more than anyone for you to be relieved of the pain and misery. You're here for a reason, you're still fighting for a reason.

Religious Hijacking

It seems religion has been hijacked....ha ha.  But seriously, I was thinking about this a lot today.  So many people claim to be religious. To have compassion and love for everyone, no matter what their beliefs are, is what Jesus taught. He admonished all of us to care for one another in sickness, loneliness and grief.
I don't every remember it being said Jesus will only Atone for the sins of those who are Mormon, Catholic or whatever religion others may fit into.  He Atoned for ALL our sins, ALL the sins of he human race, not those who belong or have been baptized into a certain religious group of people. I can truly say, I love most everyone I meet, it does not matter what their background or religious belief.  A few weeks ago a friend asked if she could give me a healing blessing for my ear and cancer issues, I was thrilled to have her anoint my face with her Turkish oil and put her hands on my head to bless me with healing.  We spoke for awhile after and she and I agreed all prayers or blessings are according to not only our faith, but also to what the Lord's will is.  We both agree on this.

 I find that so many people hide behind their religious beliefs, but forget to live what they believe.  If we are all trying to live a little more like Jesus and gain attributes of Christ in our lives, I believe we should be supporting and loving one another as He did.  There is this misconception about the Gospel of Jesus Christ, in my opinion and from what I have seen those people who have a pure heart and want to achieve the attributes of Christ, do not worry about other religious believes they LIVE WHAT THEY BELIEVE and it shows in their everyday lives, it is simply a part of who they are, it is sincere and pure.  I've said it before and I'll say it again, no one will ever walk into an LDS church service from here to the other side of the world and hear them speak evil or badly of what other churches believe in, or to stay away from them--it is quite the opposite.  An invitation is given to ALL who want to know what we truly believe and LIVE, with no pressure to get baptized, we just want people to understand why we believe like we do.  We understand that not all are going to understand, or choose to believe the books or the sermon they hear at Sunday worship.  The bottom line for me is, how you treat people, how you show your attributes of Christ in your everyday life, those are the people I want to surround myself with, no matter if you are a member of the LDS church or any other,  just stand behind what you believe and LIVE it daily.

Giving service and showing compassion towards others means taking yourself down off your throne and putting the other person on the throne, forget yourself and fall into the arms of others.  I tried an experiment some time ago, where I  decided no matter what the circumstances I was going to try and put myself in the other shoes, try to understand why they were acting out, upset or angry.  In every instance it was something that was controllable and I never saw a reason for them taking it out on others, however, we are all made up of different ways of communication and need to be taught, slowly, compassionately, and in a non judgemental way we are all Heavenly Father's children and He loves us all the same.

Embrace your faith in God

I've learned as I have grown older, made mistakes, repented of wrong doing or things I've said, I am still learning.  One of the things I know without a doubt is that the only son of our Heavenly Father died for all the sins of the world, that he suffered and felt every sin and pain of the world so that I can return to live with HIM again as I strive my hardest to be obedient and follow my heart when listening to the spirit guide me for answers in prayers.

A friend not of my faith recently confronted me about some of the things I believe in, this conversation has troubled me, and I wondered if I left the conversation with her heart feeling mine as I tried to convey what I know to be true.  Although we do not have the same beliefs, I am open to and willing to listen to the beliefs of others, because I also believe many of the worlds best people all believe in the same God, just choose to worship differently.

Something she said to me has stuck in my mind for weeks now, and I wish to share it here on my blog.  I was told "If you had the faith that God could heal you, heal your hearing in your right ear, and heal your health issues with cancer, you will be healed"  I asked her if she believed those people who have died and gone before us who suffered from life threatening illnesses died because they did not believe the Lord could heal them? she replied "yes, that is proven in the Bible" since that conversation I have pondered over my situation, doubted my faith, and wondered what was wrong with me and my relationship with God if I was not being healed.

I have studied every scripture in the King James Version concerning 'Healing' marked it, cross referenced it and still found myself kneeling in prayer asking for answers.  The answers came, and they came quickly, "do you believe in miracles?" this thought has been in my head for days. Of course I believe in miracles, I've seen them happen in my own life, but what does this have to do with her questions?

In my opinion, my life was all mapped out, after all hadn't I suffered enough through my childhood and the death of my brother?  I soon found a huge mountain in my way.  I used to pray the Lord would take it all away, but instead it became a beautiful journey.  Heaven has shown me so many miracles, I now take the rain with the sunshine and enjoy every minute of it--well most of it--the sleepless nights I have tried to pray away, but instead they have become my most learning times of the day--and I would never trade any of it--I am so grateful for knowledge I have of our Saviors love for us all, I am ashamed I asked HIM to take it all away--life is our school of learning, and the Lord is giving us a test to see how well we do.

I stand on my convictions that the Lord performs miracles, modern day miracles just as he did in the days of the Savior.  And yes, faith is needed to receive these miracles, I know because I have that faith-I have felt the spirit when a doctor who told me my cancer had in his opinion returned,  98% sure of it.  We as a family, as a ward family, stake family, and friends of all faiths began to pray for me.  I cannot say for sure what was said in those prayers, but I can tell you I had faith and believed in every fiber of my body that this was not the time for me to die--that through my faith in the doctor, and with my faith in miracles, I was saved.  I did not live through that simply because I had enough faith, I lived through that because the Lord, and only the Lord knows when it is time for us to return home to him.  It was not my time.  Every trial we endure here on earth, the Savior has felt, he took our sins and sorrows upon himself.  The Atonement is for EVERYONE, not just those who have faith in him, not just those who live in the light of Christ.  The Atonement is for the men and women sitting in jails for unthinkable sins, it is for the perpetrators of hideous crimes, there is one thing I know for a fact is that HE loves everyone.  He is disappointed, just as a parent is when a child makes a choice not appealing or wrong, he is sad when we do not kneel in prayer everyday and say Hi, there is always HOPE for every single soul, none of us are better than others in his eyes, he loves us all the same.

When it is time for me or any of us to go home to HIM, it is because HE is in control, it has nothing to do with how much faith we have.